Hani, 16 years old, twin girls from a male twin, since she was in the 2nd grade at Madrasah Tsanawiyah, she hasn't gone to school for more than 2 years, the doctor didn't give permission because Hani was diagnosed with leaky kidneys (Steroid Resistant Nephrotic Syndrome). ). nausea, vomiting, fever and weakness, accompanied by swelling throughout the body. We didn't realize that recently Hani looked fat because of Edema (severe swelling). It was only after being taken to the local hospital that the doctor determined that Hani had SN. Sad, sorry, confused and don't know what to do anymore, because at the moment our biggest focus is on caring for, guiding and taking care of his twin brother, a boy who has a disability and is studying at LB Middle School. Day after day continued to pass, Hani's pain experienced ups and downs, and her condition reached its lowest point around 1 year ago when Hani had to experience up to 15 seizures in 24 hours and finally had to be referred to the emergency room at Dr. RSUP. Sarjito, Yogyakarta for more intensive treatment, and is still being monitored and carrying out routine controls until now.
Now Hani's condition continues to improve and hopefully it will not decline again and she will recover completely and be able to live a normal life again. Our parents' focus is divided, our income is uncertain, we can afford daily living expenses, but with this condition we still really need money for Hani's treatment, operational costs for Hani's routine checks, buying medicine and vitamins, health support equipment, and other necessities. especially for him.
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